We’ve compiled a list possible sites where you can research various conditions.  This list is in no way exhaustive.  Together Patient Advocates does not recommend or endorse any of these sites or organizations and we are not responsible for the accuracy of the content on these pages.  When accessing information on the internet, we recommend that you only use reputable sites.

 

Advocacy

General Medical Sites

These are trusted medical resources for a variety of conditions.

  • American Academy of Family Physicians Allows home triage of many common ailments.
  • Mayo Clinic   Disease summaries from arguably the top hospital in the US.
  • Uptodate Enter search topic, on results click on ”patient free.”  The physician subscription service is used by physicians everywhere.  Their free patient handouts are detailed and link to evidence based guidelines.  
  • Web MD

 

Specific Conditions

Alzheimers

Alzheimer’s Association 

Advanced Directives

PDF version of Advanced Care Directive 

Five Wishes

Aging

National Institute on Aging

Center for Healthy Aging    

Arthritis

Arthritis Foundation  

Autism

The Autism Society 

Autism Speaks

Cancer

American Cancer Society  

National Cancer Institute 

Chronic Pain

The American Chronic Pain Association

Chron's Disease

Chron's and Colitis Foundation

Clinical Trials

Clinical Trials.Gov

COPD

COPD Foundation 

Cystic Fibrosis

Cystic Fibrosis Foundation

Dementia

Alzheimer's Organization

 Lewy Body Dementia Organization

Diabetes

American Diabetes Association

Gastrointestinal Disease  

American College of Gastroenterology

Genetic Disease

Gene Cards

Genetic Disease Foundation

 National Organization for Rare Disorders

Heart Conditions

American Heart Association 

American College of Cardiology ACC guidelines for cardiac conditions

Hospice

National Hospice and Palliative Care Organization

Hospice Foundation

Medicare 

Leukemia and Lymphoma

Leukemia and Lymphoma Society

Lupus

Lupus Foundation of America 

Mental Health

Mental Health America-

National Alliance on Mental Health 

Multiple Myeloma

Multiple Myeloma Research Foundation

Multiple Sclerosis 

National MS Society

Muscular Dystrophy

Muscular Dystrophy Association

Neurological Conditions

American Academy of Neurology 

Palliative Care

Get Palliative Care  

National Hospice and Palliative Care Organization 

Palliative Care Lecture by Dr. Steve Pantilat, UCSF

Parkinson’s Disease

Parkinson’s Disease Foundation

Rare Conditions

 National Organization for Rare Diseases 

Rheumatologic Conditions (Rheumatoid Arthritis, Lupus, etc)

American College of Rheumatology

Lupus Foundation of America

 Stroke

American Stroke Association